CdLS Awareness Day

CdLS Awareness Day

Happy Tuesday friends! How was your weekend and Mother's day?  My weekend was awesome! We finally saw Avengers End Game. Great movie! Mother's Day was great even though I did 4 loads of laundry 😂 but my kids and Karl cooked both brunch and dinner and it was fantastic! So grateful for my family.   [...]

FIFTH-TEEN?

FIFTH-TEEN?

Dear Riley, 15?? That's a big number especially for the Big number that is to come next year.  You were our first angel.  I will never forget the day you were born The Unknown Journey – Riley .  It was a glorious day but also a scary one.  That was the day that Dad and [...]

Riley throws his shirt out of a moving car

On Tuesdays after school Riley has private therapy.  He literally comes home, unloads his backpack gathers his ‘stuff’ (I’ll get to that in a minute), snack, and communication device. I load the whole crew into the car to drop him off at therapy.   Now if you know Riley you know how hard it is to [...]

The Unknown Journey – Riley

We were told you may not walk, you may not talk, go to school, enjoy life, or live at home… Let’s back up 5 weeks to early January 2004.  Whole family is in town to see the 30 week ultrasound. First grand child, everyone is excited!  It was Friday and we were all going to see the perinatologist.  [...]