CdLS Awareness Day

CdLS Awareness Day

Happy Tuesday friends! How was your weekend and Mother's day?  My weekend was awesome! We finally saw Avengers End Game. Great movie! Mother's Day was great even though I did 4 loads of laundry 😂 but my kids and Karl cooked both brunch and dinner and it was fantastic! So grateful for my family.   [...]

I feel so FREE!

I feel so FREE!

Happy Tuesday Friends!  I hope you had a fantastic Thanksgiving! I took a break from the blog last week to spend time with the family for the holiday.  We spent most of the week at the lake house with friends and family.  Of course there is always ‘something’ to be done at the lake and [...]

Beyond Grateful

Beyond Grateful

WOW my gratitude is beyond belief....  I am humbled, so very humbled. You all came out and represented and I am forever grateful.  The 9th annual Brew & BBQ for CdLS was a success.  I am not going to lie, I was nervous.  I moved the venue to bring it closer to home and our [...]

Why I Brew & BBQ

Why I Brew & BBQ

Hey friends!  Hope you are doing well and having a great week! Today I am sharing about the fundraiser I have hosted for the last 8 years for the CdLS foundation.  For those that don’t know, my son Riley was born with Cornelia de Lange Syndrome which is a very rare syndrome. I will never forget [...]

Saturday

For 6 weeks in the Fall and Spring, Riley plays t- ball for North Metro Miracle League http://www.nmml.net He hasn't missed a season since he was 7 years old. It is my happy place for those 6 weeks on Saturday mornings. I get to see him do an activity he loves and get to chat [...]

Riley throws his shirt out of a moving car

On Tuesdays after school Riley has private therapy.  He literally comes home, unloads his backpack gathers his ‘stuff’ (I’ll get to that in a minute), snack, and communication device. I load the whole crew into the car to drop him off at therapy.   Now if you know Riley you know how hard it is to [...]